Introduction: Thalassemia is a genetic blood disorder that significantly affects the lives of those diagnosed and their families. While medical advancements have improved the management of thalassemia, the emotional, psychological, and physical toll on caregivers, particularly mothers, remains largely unexamined. As primary caregivers, mothers are often at the forefront of managing their child’s treatment, which can lead to increased stress and health complications. Understanding the intersection of chronic illness and parenting is crucial for creating holistic care approaches that support both the patient and the caregiver.

Aims: This study aims to explore the impact of thalassemia on maternal health, specifically focusing on the psychological, emotional, and physical challenges mothers face in managing a child with a chronic illness. 

The objectives include identifying key stressors associated with care giving, understanding the coping mechanisms employed by mothers, and examining the need for targeted support systems to improve maternal health outcomes.

Methodology: A mixed-methods approach was employed, combining qualitative interviews with 20 mothers of children with thalassemia and a quantitative survey measuring levels of stress, anxiety, and physical health. The interviews aimed to capture personal experiences, while the survey provided a broader understanding of the impact on maternal health across different socio-economic backgrounds. Data was analyzed to identify common themes and correlations between care giving responsibilities and maternal well-being.

Results: Results indicate that mothers experience elevated levels of emotional distress, with 65% of participants reporting chronic anxiety related to their child’s health. Additionally, 58% of mothers exhibited symptoms of caregiver burnout, including sleep disturbances, fatigue, and physical health complaints. Notably, many mothers reported feeling isolated due to the demanding nature of care giving, with limited time for personal self-care. However, support networks, including family members and healthcare providers, were found to play a significant role in mitigating some of these challenges.

Conclusion: The findings underscore the critical need for integrated care models that consider the health and well-being of mothers as part of thalassemia treatment plans. Healthcare providers should recognize the psychological and physical toll on mothers and offer targeted interventions, including mental health support, respite care, and caregiver training. Additionally, fostering robust support systems within the community can alleviate some of the emotional burdens. This research highlights the importance of a family-centered approach to chronic illness management, ensuring that both patients and their caregivers receive comprehensive care to improve overall quality of life.